News from Mathilde

“Mathilde's epilepsy is quite stable. However, this disease comes with its share of challenges when one enters school. Medication, which must be adjusted according to weight, requires careful monitoring of growth spurts. We also discovered that Mathilde probably has a learning disability. We are currently investigating whether it is induced by epilepsy, medication or if it is in addition to his primary condition.”, Josée, her mother, explains to us.

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Mathilde and her parents can also count on the involvement and help of the school team as her current medication seems to be working well, but in particular it makes Mathilde more tired and she has to take naps at dinner time, if she wants to be in good shape in the afternoon. In addition, Dr. David Dufresne, her neurologist, provides personalized follow-up while ensuring that Mathilde has all the necessary evaluations as well as the care and services to allow her to thrive despite her condition and the repercussions in her life.

“Otherwise, Mathilde loves dance, plastic arts and inventing stories. It is not always easy, especially for parents... we know in advance that Mathilde's path will be different from that of the majority of children and sometimes the realization and the mourning can be quite violent... but our daughter, like many sick children, is a warrior. So, we trust him while trying to make his way easier with the resources and tools we find. For the rest, we try not to anticipate too much, to celebrate every small victory and to trust life! But despite all these challenges, my gumball is still a cheerful and sneering 6-year-old girl.”

Rediscover the story of Mathilde and the storms in her head in this video.

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